Real World Data: Primary Data Collection

When existing data sources are inadequate to answer key research questions, PHAR researchers can design and conduct studies gathering real world data from electronic health records or other primary sources.

Primary data collection can be used for:

Prospective or retrospective studies
Understanding treatment patterns and treatment decision-making
Comparing treatment outcomes, including symptoms, disease progression, and survival
Increasing knowledge about rare diseases
Estimating comorbidity rates or safety outcomes
Validating algorithms to be used in secondary data analyses

PHAR’s capabilities span all aspects of study design, execution, and management, including:

Protocol development
IRB submission
Development of electronic case report forms
Site recruitment and support
Data abstractor training
Secure data storage
Data quality assurance
Statistical analysis
Interpretation of results
Development of technical documents, presentations, and publications

We excel at designing, collecting, analyzing, and disseminating findings of primary data studies that address clients’ key research objectives in a rigorous, effective, and timely manner.

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